Life is just a bowl of All-Bran…

March 15, 2006

Been a long time, been a long time….

Filed under: Family, Lucy's health, My health — bogl @ 9:46 pm

…but not a lonely one, as it turns out.

Much of the latest news is also on L’s blog, but I’ll try and summarise.

We are now thoroughly back in our house after the drains were replaced. We went on holiday to Winforton Court’s holdiay cottage soon afterwards. Glorious weather, though cold. We even got to take E on her sledge for the first time, which was wonderful.

Whilst our car was parked in Winforton Court a builders’ merchant lorry managed to put a big dent in our car roof and boot door. They accepted liability (how could they not??) but a merry half-day was spent entertaining L in in their premises. Quite easy actually. The car has now been fixed.

Life seems to be settling down somewhat now. L has had her last two doses of Epirubicin, which went without incident. Long waits, however, are unavoidable. She is beginning to get more and more tired, but is still going to work one or two days a week. E has been a little bit poorly lately, but is over it now.

I had an appointment with the orthopaedic consultant last week. The scan shows I have torn my meniscus on the inside of my right knee, and I will be having an operation on Weds 29th March to try and fix it. It will be a keyhole procedure, which should try and trim the frayed part of the meniscus back. It’s not without its possible drawbacks, but it’s become evident it will not heal by itself.

More to come….

February 27, 2006

A fast appointment!

Filed under: Lucy's health, My health — bogl @ 4:43 pm

Just a quick update today.

L had an appointment with the oncologist – actually, the oncologist’s registrar.  In and out within an hour!  Makes a nice change.

I pestered the fracture clinic about the MRI scan results.  I have an appointment on Thurs 9th March.

Thank the Lord for both of these!

February 23, 2006

Taking a shine to Lucy

Filed under: Lucy's health — bogl @ 11:17 pm

During our time in the hotel, L’s hair started coming out quite substantially. We then went round and borrowed Jim’s hair clippers. In effect, I gave her a No. 1.

New Romantic?

This is partway through the process.

A Flock Of Seagulls

I understand the clamour of people who want to be the fifth Beatle, but the fifth member of A Flock Of Seagulls??

Here’s the finished item, with a not entirely convinced (but not terrified!) E:

L & E
And here’s Jim vs Lucy, the skinhead faceoff:

skinhead faceoff

By Wednesday this week, L was finding even what remained of her hair irritating and so I offered to shave it all off. Amazingly, she agreed! it took two razors but I managed to get it all off without nicking her once.

She says it makes wearing her wig and various headscarves and hats much easier too (of which more pictures to come). Oh, and she doesn’t have jaundice either – mobile cameras are a bit rubbish indoors at night.
She’s doing so well! Even been to work this week. What a woman.

A draining experience

Filed under: Family, Lucy's health, My health — bogl @ 10:16 pm

It’s been a while, and here’s why!

The last post was Wednesday 15th. The next day, we innocently flushed the toilet, and the whole lot backed up. Thankfully, it didn’t overflow.

We knew there was some kind of problem because the gullies outside the house didn’t seem to be clearing too well, and I had it in mind to have a go at clearing them. The toilet was the last straw.

I beetled off to Homebase to get noxious chemicals, plungers and the like, and started trying to clear the gullies. Nothing budged at all.

I started going through the ‘phone book looking for drain clearing people. One firm came out within the hour, but without immediate success.

A friend who lives round the corner was on holiday & we were minding the house for him. Taking this responsibility to its logical conclusion, we moved in there that night (thanks Rich). As he was coming back the following day, and the house was still not habitable, we booked in to a local hotel, with the distinction of being the only licensed premises on the Bournville estate.

We stayed there until Wednesday morning, by which time the drains guys had done all their work and the cleaners had tackled the kitchen & bathroom. Cleaners? Can’t the Harrisons do their own cleaning?

On Tuesday morning I was sat on the bed in the hotel room tying my shoelaces. I stood up and wiggled my foot around in my shoe so it felt just so…and my knee went again. If that’s all it takes, it really does need some looking after!

L couldn’t do the cleaning, as she shouldn’t be getting in contact with potential sources of infection, and I was walking like an old man again. L’s father suggested we just got someone in to do the cleaning, so we did. And very good No Limits of Hockley were – unlike another company who laughed down the phone and said, “[Company] couldn’t come out on the same day!”. They won’t be getting our business again.

All I can say is: it’s great to be home.

February 15, 2006

Line dancing

Filed under: Lucy's health — bogl @ 11:23 pm

Yesterday, L went into hospital at 7am. This was in order to put in a Groshong line, which makes chemo and taking bloods a lot simpler. No injections, just plug ‘er in.

I was encouraged to leave her in the ward by the admin staff – no fun, as I realised they were going to be putting the line in under a local. L hasn’t been “around” when ops have taken place in the past, and didn’t want to start now.

I took myself off to the hospital canteen for a cooked breakfast, then strolled to the local shops to go to the library. I’m preaching at church this Sunday morning, and wanted to do some more prep. Then I discovered the local library was closed for refurbishment. Guess I should be pleased the council was putting money into these old-fashioned places with paper books in.

After hobbling round a little more, I gave up and went home. Knee was being v irritating.

It took a long time for L to get into theatre – probably around 1.45. So much for getting there early. She finally emerged at about 2.45, rather groggy. They decided to give her a larger amount of sedative, so she can’t really remember anything about what happened.

The line is near her breastbone, about three inches long. When she got to chemo at 5.30, it seemed dead easy to use and fairly quick, we were out by 6.

So far, dose two seems to have had few side-effects, although we fear that more hair is beginning to appear in the sink…

February 13, 2006

So tired, tired of waiting….

Filed under: Lucy's health — bogl @ 9:47 pm

Quick update on L.  We had another appointment this afternoon, this time with the oncologist’s registrar.  He asked how L was doing so far, and seemed quite surprised she had suffered so little in terms of side-effects.  He thought that tiredness was likely to be cumulative, though it isn’t for everybody.

We also discovered today that the cancer was HER-2 negative, meaning that Herceptin wouldn’t be of any help.  He reckoned that was no bad thing.  HER-2+ cancers tend to be more aggressive, and Herceptin tends to tone them down to the level of HER-2 – cancers.

All this took fifteen minutes, after one-and-three-quarter hours waiting around.

Tomorrow, L has the Hickman line put in so she can have chemo & blood samples taken though it rather than her poor veins.

February 1, 2006

The new wife

Filed under: Family, Lucy's health — bogl @ 11:31 pm

Not only has L had her first dose of chemo this week, but she has been preparing for the loss of hair she’s likely to suffer.

When she first heard the news, L’s friend Louise said, “If you want me to come up and go wig-shopping with you, I’ll do it!” On Wednesday she came up from London for the day to help out. You can see the pictures here.

They seemed to have had a great time. By the end of the process L had not only narrowed down the choices of wig to two, she also got a fab new haircut, by far the shortest she has had since her age was in single figures. I think it looks great – but it may not be around for long.

Thursday I went with L & E to make the final choice from two wigs called “Tonia” and “Blair”. Resigned to becoming a walking ad for New Labour either way, we (especially E) settled on “Blair”. The other would actually take a good deal of styling, whereas “Blair” was more straightforward to deal with. E enjoyed the wig place so much she didn’t want to leave!

She’s now very confused. She keeps saying to L, “Take your wig off Mummy!”
L's new wig
The wig: “Blair”

L's new haircut

The new hairdo

I watched a Christian poison my wife!

Filed under: Family, Lucy's health — bogl @ 11:20 pm

Overdramatic title maybe, but strictly true. Today was the first dose of chemotherapy for L.

The cancer dept has a nice airy waiting room, which looks like a superior airport departure lounge. L announced her presence, then waited. The clinical trial nurse came, arranged for L to have a final check with a doctor, then went in to have her chemo.

The nurse was lovely, really kind & caring. Turned out she was a member of a local church. Hence the title.

Administering the drug was very trying. Neither she nor another nurse could get the needle into her arm. Finally they did manage it, but as veins are only supposed to be injected once like this, she only has one more “go” left in a vein for her subsequent treatments. She will probably have a more permanent “line” inserted into her chest in the not-too-distant. This has to be done in theatre, and may mean another overnight in hospital.

Meanwhile I was sent off as errand boy to the pharmacy to collect the seven different medicines she will need over the next few days. These include a mouthwash (chemo can be hard on the mouth and throat) and antisickness drugs. I also collected the syringe for her injection tomorrow to boost her white cell count. Most of these drugs are on prescription and need paying for – time to get an “all-you-can-eat” voucher for the year.

Of course, in with all this was a great deal of Waiting Around. We were in at 2 and came out at 5.20.

And now, we wait to see how the whole business affects her. She has an appointment tomorrow for a wig fitting.

Anyway, thought I’d put a photo of E in reading the paper. She looks geuninely disturbed from reading an important article about the issues of the day.

E disturbed from reading paper

January 23, 2006

L’s chemo starts soon

Filed under: Lucy's health — bogl @ 8:34 pm

Another day at the hospital…just a quick update.

L is to be part of the clinical trial discussed last time, and starts her treatment on Tuesday 30 January. The treatment cycle will run like this…

  • Tuesday: L is given chemotherapy. It takes a couple of hours for pharmacy to prepare it, and then abour forty-five minutes for it to be administered intravenously.
  • Wednesday: L goes in to hospital again, this time for an injection of a drug designed to boost her white cell immunity.
  • Following Tuesday: L goes in to give a blood sample so they can keep tabs on how her immune system is doing.
  • Tuesday after that: the cycle begins again…

and that cycle will happen eight times in total.

She also received her wig voucher! So, a trip to Rackhams to choose something suitable will be happening soon.

I think we are both pleased that treatment will be starting soon. The sooner, the better.

More to come in both blogs…

January 17, 2006

The results from the op

Filed under: Lucy's health — bogl @ 9:37 pm

Another afternoon in that peculiar setting of NHS waiting rooms and multiple consecutive appointments.

1.30: arrive at clinic. L sees the nurse, also her key worker, to have her dressings looked at and a substantial amount of fluid removed from under her arm, equivalent in volume to one-and-a-half cans of Coke. L felt much more comfortable after that!

Then, another wait. This is in the long corridor of treatment rooms and chairs, with various folks waiting. Most appointees have someone else with them, seemingly a partner or friend. One or two are alone, including a bloke whose name is called. Yes, men can get breast cancer too.

Next we see the surgeon who performed the operation. The tumour is described as “no special type” of cancer, but is grade 3, putting it as the most active of tumours. It was 19mm across, probably about the smallest a lump can be and be detectable. They also removed a margin of good tissue from around the lump which was clear. So, the malignancy has all been removed. They also took lymph nodes out from under her left arm. Twenty were removed: one was found to contain cancer cells. So, the cancer was set to spread around the body.

The next thing they need to determine is exactly what type of cancer it is. It has no hormone receptors, which affects the type of treatment they can use. We don’t as yet know whether Herceptin will be useful either – results of that test won’t be through for a week or two yet.

All this adds up to the treatment we expected: chemotherapy followed by radiotherapy. After that, L will be followed up for at least five years, with checkups every two years (about the length of time it takes a tumour to develop and show up via mammogram).

After this, another long wait – why doesn’t the WRVS do nice coffee any more? – and then an hour with the oncologist. He reviews the same information as above, with some added details.

The chemotherapy will be a standard treatment called Epi-CMF. Epirubicin is administered every three weeks for four doses, then a cocktail of three drugs, four lots four weeks apart. Their aim is to kill fast-growing cells, like cancer, but they also affect other cells like hair and nails, and can have a permanent effect on fertility. These drugs are poisonous, and can have some unpleasant side-effects. Quite how L will react to them remains to be seen.

The hospital is running a clinical trial at the moment whereby exactly the same drugs are used but over a shorter period of time, so that the overall chemotherapy treatment takes four-and-a-half months instead of seven. An extra drug is also administered to help bolster the immune system. It’s believed that this “kicks the cancer while it is down”. L has been offered the chance to take part in this trial, and seems minded to do it. If nothing else, it gets it all over with quicker! (Details of the trial here for the medically minded.)

We finally left the hospital at 5.45. It may have taken a while, but the fact is we had lots of time with specialists – some internationally known – and have a great deal of confidence in the level of care L is getting.

A day later, I confess to feeling low. I think it takes a long time for things to upset me, to burrow through the Yorkshire hide and sink in. Jesus is Lord, and I believe He is in control, no matter what Richard Dawkins thinks. Still doesn’t stop me feeling low though. Look at the psalms, after all. Wide variety of emotions expressed, but still showing faith in God – they are, after all, addressed to Him!

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